Tuesday, May 29, 2012

See and Count the Blessings!

Tired, Sleepy and HOT

I am tired, sleepy... it's been hot and muggy all day.  Husband was away this evening, the house was a mess, Remy poured things here and there, peed here and there, my daughter kept demanding "I want this (now)" over and over... did I mentioned I was hot and sweaty, trying to clean and please the demands through the contractions? 

Breathe, Kim.  It's OK.  Yes, it was uncomfortable, challenging, and I rather would have been relaxing somewhere in the basement without noise and mess, but that was what I had.

After I finally got both kids in bed, I went into the kitchen just wanting some water and then to retire to my own bed, I saw that there was soaked quinoa that should be cooked.  So I did that.  And after that, I saw that I might as well wash the dishes... and clean the table, sweep the floor, wash the pots - ah, at last!  I pumped myself some water and drank.

Realisation of Countless Blessings
I retreated to my newly painted yellow room, gathered my notebook and charts to fill out for Remy.  I started writing... and I realised how many awesome things Remy did today.  In fact, he's outstanding; I just have to see it.  Despite all the challenges that his sensory "needs" present to me, I am so glad that when the noise settles, and the rippings swept I am able to cherish these precious moments.

Let me just present a few moments for everybody's enjoyment. 

Wiggly tooth

Still wiggling...

"Hurt!"
This morning in Remy's Play Room, Jo was playing with Remy when suddenly he bit her (he's been wiggling a tooth for several days now).  I was taking notes when this happened and didn't see the actual bite.  From there, I watched closely.  Jo said "no, Remy, that hurts.  That hurts."  And she showed him a frown.  Again he went close, and she said "that hurts."  Now, Jo didn't hear this, but I certainly did "hoort" said Remy looking right at her!  he repeated the word "hurt".  He seemed to understand. 

"Aw"
Jo was playing the xylophone when Remy approached her.  She handed him the mallet which he took into his hand.  I think he hit the xylophone twice then threw the mallet on the floor.  Jo's face dropped and said "aw" like out of disappointment.  Immediately, Remy repeated "Aw" - he is definitely listening and responding to us even when we don't realise it.  Jo and I talked about this afterward, of course.  She didn't hear what I did, but will certainly look for these responses from now on.  It's easier sometimes just watching from outside to perceive what is going on.

Greetings
This afternoon, before picking up his sister, Remy and I went to pick up some test results from his ND's office (which happens to be right beside the place where we get our water from).  After obtaining the results, I noticed that Remy was looking right at the receptionist.  It was very cute as his chin just reached the top of the counter to look over.  Before leaving, I got down to Remy's eye level and told him we were leaving and waved, said nothing.  He turned back to the receptionist and said "bye" (not perfect pronunciation, but definitely knew what he was saying) waving (he's still working on this, but his hand does reach higher with every try!) to her.  I couldn't help but just pull my right fist down from the air"yes!"

After we left the ND's, we went into the water store.  Right away, Gary (one of the two gentlemen we see there) greeted Remy with much enthusiasm hold his hand forward as he approached Remy and as Remy approached him.  Remy put his cars into his left hand (he usually holds two items such as cars) and extended his right hand to shake Gary's coupled with a huge smile.  He then took a seat signalling he was comfortable and wanted some fresh water. 

Our visits to the Eco Water store have been examples of growth.  When we first went to the store, I stayed a long time chatting with the manager about water, filtration systems, etc... after the first few visits, Remy became familiar with the friend gentlemen.  I recall him turning around to wave "bye" the first two times we left (I celebrate every time - the gentlemen too).  And every subsequent time, his greetings are more natural and less prompted. 

After Gary stowed the heavy water bottles into my car, I said "bye" to Gary.  Remy was getting ready to go into the car, but realised that it was a good-bye time.  So, he turned and walked to Gary.  I thought he was going to just say "bye" and give a bigger wave (his waves have come a long way since our first visit to the Eco Water store), but he actually gave Gary a big hug! 

I really should video record him going into the store and leaving!

Responding
In the evening after supper, I went on video chat with the kids' Auntie D.  Most of the conversation was between her and Remy's little sister... I was trying to clean up, and prepare for the kids to go to bed.  Randomly, I heard my sister command Remy "clap", and Remy clapped.  I looked at their conversation.  He was in front of the computer looking at her with his hands still at the sides waiting to clap again.  She didn't say anything, so HE said "clap" (may have sounded like "gaAp") and clapped again.  I put down what I was doing to celebrate him, then also threw in another command (this was like his version of Simon Says) "jump, Remy".  Sure enough, he got off the chair and jump a big loud "thud!"  It was a game to him!  So I said "touch your nose", and he touched his nose (and may have also said "nose").  I was very excited!

Alas, I was so tired, hot and sleepy... yet writing, realising the wonderful things Remy did today just fueled me to write this post to share with you.  Thank you, Remy!

And thank YOU for your continued support.  Blessings to you all,











Sunday, May 27, 2012

Eating Fermented Vegetables

Almost two weeks ago, we had a consultation with a very knowledgeable autism specialist named Aaron Deland.  During our consult, he mentioned that families who had successful programs, typically covered three components:  1.  a Relationship based Program, 2. biomedical Intervention/Special Diet, and 3. a program for the child's sensory issues such as HANDLE. 

For a diet, he recommended the Body Ecology Diet by Donna Gates.  It's a diet for getting rid of yeast overgrowth.  I absolutely loved the concepts and principles in the book when I first read it over a year ago... even before then, I was already culturing vegetables for natural added sour condiment and probiotics.  Here's photo proof of Remy enjoying this delight:

What are you eating, Buddy?

Mmmm... fermented veggies!




Have a Happy and Healthy day!

Monday, May 21, 2012

VISITING NOVA'S ARK

This past Sunday, we (Remy, his dad, his sister and I) had the privilege to visit Nova's Ark, a paradise of loving volunteers and different kinds of animals tucked away in Brooklin just north of Whitby.  One of Remy's volunteers has dedicated over 100 hours working with the family of animals and great people at Nova's Ark.  She was SO excited that we were coming to visit.  I text her when we arrived, and she came right away to meet to start us on our tour!

Remy started off a little "shy", covering his eyes and walking slowly toward where we were leading him, but little by little as he saw where he was and felt the safety and love in the environment, the more comfortable he became.  To me, it was like one HUGE outdoor Play Room :)

We met Mary-Ann Nova, the founder of Nova's Ark, when we arrived up the walk.  What a wonderful, passionate retired principle who loves all special needs people!  She says that the animals bring people together, but it's the people that keep people together.  For more information about Nova's Ark, please visit:  http://www.novasark.ca/about-us/what-is-novas-ark/.


Tina takes Remy to see a real live goat.

Wow!  a kangaroo outside of Australia!

Looking at the kangaroo and walabies.

Horses, camels, small donkeys... what else?

Petting a pig named Rooter.

Remy meets more friends... what's with pulling up the shirt?

Nice smile!  

Piggy on the belly, please!

Remy just can't get enough, and laughs!

Running in the field.

Uh-oh!  Remy dropped his car...

Remy picks up his car in the turbulent giant trampoline.

Everyone having FUN!

Tina piggybacks Remy back to the road where our car is parked.

Boy, Tina is strong...

Give Tina a hug, Remy.

Bye, Remy!


We definitely want to be able to send Remy here for a day camp.  The donation amount if $120 for a Sunday Exploration.  We really quite like this place for several reasons:  it's out with nature and animals, loving and passionate volunteers, and we would also get a break for about 5 hours!  While at Nova's Ark, Remy would be paired with at least one volunteer who will follow him wherever he'd like to go:  see and pet the animals, play in the playground (trampoline, slide, apparatus outside), fine motor or gross motor activities, the swimming pool... The bonus is that Remy already loves Tina since she comes in to play with him in his Play Room at home twice a week.  Now, if we can send him, he will have exposure to so many more friends who want to get to know Remy as he is.  What an awesome concept!

Thank you, Mary-Ann, Tina and all the wonderful volunteers who spent time with us this past Sunday :)  We hope to see you again soon!

Have a an awesome day!

Thursday, May 17, 2012

HAPPY BIRTHDAY, REMY!


Every year for the past 3 years since his diagnosis, Remy has been consistently sick (like fever, vomiting, low energy, in bed, red... just out) on his birthday.  As well, he has consistently pushed his birthday cake (that I make for him and his special diet) away.

This year, for his 6th birthday, I decided to take a chance and plan him a birthday PARTY with the family and friends (our amazing volunteers!) Remy is closest to and most familiar with.

A week before his birthday, Remy started sneezing, and wiping a very runny nose all over himself... I think we were all hoping he would recover and be fine for his party... and it was excellent wishful thinking, because he was FINE for his birthday!  Thank you so much for believing we would have a healthy celebration for the little guy.

How many people came?  
Would you believe that including Remy we were 14 people:  Nana, PauPau, GongGong, Auntie D, Auntie G, Mommy, Daddy, Sister, Mary, Tara, Jo... and Tina and Jo's husband by cake time.

Over three years ago when we threw our last party for Sister's 1st birthday, Remy would have a blank expression when people arrived.  In fact, he would take my friend Dana's hand and take her into his room and close the door.  He didn't seem to like all the people in the house.  He didn't seem to care about singing "Happy Birthday", candles, presents... he was in his own world.

Celebrating Remy in Our World
He's come a long way into our world, celebrating with us now!  I am happy to announce that he thoroughly enjoyed his 6th birthday... he played in the backyard, ate with everyone else eating, danced about with his sister, looked at people, ripped paper, ran to his lit-up birthday cake, sat down in front of it when I placed it down on the table, let us sing "Happy Birthday" to him and even tried blowing out the candles after!  Of course he sampled the frosting (something he hasn't done since his 2nd birthday) while the cake was in reach :)  Then, after the cake was sliced and served to him by his very loving Auntie D, he ate it with a fork!  Then after the was done, he ate TWO more pieces of cake... eventually resorting to using his bare hands ;)


Lots of food for everyone!

Remy eating watermelon... and more and more watermelon balls.

Remy, while ripping, turns chair toward the lit-up birthday cake.

Remy gets off chair to follow lit-up cake to table!

Lit up gfcf birthday cake in front of Remy.

Remy sitting in front of cake and sampling frosting.

Remy receiving some loving help blowing out candles.

Daddy holding Remy back from frosting as we take a family photo.

Remy eats his cake!  Two more pieces to follow...

Opening presents.

More presents and more cake...

Gotta love that wrapping paper... so rippable!

Playing with  circus tent from Auntie D.

Take a pic with Tara and Tina

Tina scoops up the 78 pounder!

Remy is up to Mommy's underarms!
Thank you everyone for coming to celebrate Remy whether via Internet, telephone, thought or mail.  I am so grateful for such a wonderful celebration of my child who is growing!  Thank you, Remy for helping me to continue to grow :)

Enjoy your day,